The case for a National Strategy for MND
Urgent national action is required to improve the quality of life and achieve dignity in death which people with MND need and have a right to expect, no matter where they live in this country.
Urgent national action is required to realise efficiency gains and value for money of spend on care for people with MND and research into the causes and cure of this disease.
A National Strategy for MND will provide a road map and set standards for the co-ordinated, holistic care of people with MND, from diagnosis to death. It will lend weight to efforts to address bureaucratic and regulatory burdens
that currently delay much needed research. A National Strategy for MND will support effective resource planning and allocation, thereby realising value for money.
Imagine a healthy and alert mind trapped inside a body that can’t move, but can still think and feel. That’s the devastating reality of motor neurone disease. By joining our call for a National Strategy for MND, you can help make a real difference to the lives of people with MND.
